Cycle 3 - Complete

Cycle 3 - Day 21! Another cycle behind us, whew. Trey had his blood drawn this morning and if his counts are still stable then we head back to Strong tomorrow for Cycle 4. He is eating and feeling good, so that is a plus that he heads into the cycle strong. I really, really, really hope that this is the last cycle. Trey's sleep is still all over the place. We'll work on that once he is better, for now, he should enjoy sleeping in mommy and daddy's bed! We will be in the hospital from Tues-Thurs. Tim is actually hoping to get more sleep in the hospital, so that tells you how little sleep we are getting now. :)

Plans for Trey Fest are coming together and we are so looking forward to this event. The friends and family that have organized this are truly awesome, I can't thank them enough. They have even put up with me butting in along the way, they know how I am so they are "managing" me well. I don't get out much these days in case you didn't notice so I am really, really looking forward to seeing people and getting a break from episodes of Blues Clues. Among the many donations that they have coordinated, I just wanted to mention one that I thought was just too cool. Palmer's Food Distributors are donating hots and hamburgers for the event (yummy) and they read Trey's blog and also donated an entire case of meatballs for little Trey! This is too awesome. It is also nice because Nana and Papa can get a break on meatball making.

Take Care!

Cycle 3 - Day 15

Trey's counts are back on the rise, so no more shots this cycle. He is eating meatballs and is almost entirely off of formula. Whoo Hoo! His sleep patters are completely messed up and at this point we're not even sure it has anything to do with his treatment. We've established some habits this cycle that are going to take some effort to undo, such as going to bed at midnight, sleeping until 10am and then settling in for a late day nap at 5pm. This has made our days and nights quite interesting.

If Trey's counts remain stable then he heads back into the hospital next Tuesday for the 4th round of chemo. This will be another three day stay...the fun never ends. Tim and I are looking forward to spending time with friends and family at Trey Fest next Saturday. For obvious reasons, Trey won't be able to come. Big Sis Josie will be there and will fill Trey in on everything when she gets home.

Positive vibes and prayers for our little trooper Trey! Many thanks to friends and family as always. I don't know what we would do without your help and support.

Sleepless in Fairport

Cycle 3 - Day 7 and so far Trey is doing well. He is not sleeping as much as he should, similar to how he was during the first cycle (remember the midnight stroller rides?). We think it is a side effect of one of the drugs he received this round. The past three nights he has been up until midnight! Big sister Josie is not too happy that baby Trey gets to stay up later than her. He sleeps in a little later in the morning though, so that is a plus. Yesterday afternoon Tim took him for a long stroller ride to try and get him asleep only to return with Mr. Trey wide awake. So, then I took a turn and put him in the car and drove around for a while. He was finally asleep then I turned the car off...AWAKE again! He powered through until Midnight with little more than one hours sleep the entire day! Crazy boy.

Trey had his blood drawn this morning so we'll know his counts later today. Hope all is well with everyone.

Cycle 3 - Day 4

We're home from the hospital and on another 21 Day Journey. Trey did well in the hospital and got a chance to visit all his buddies on 4-3600 again. We started the cell-booster shots today. The doc said that it is likely Trey's counts will bottom out again this cycle, which is normal. We hope his counts will recover quickly as they have in the previous two cycles. (prayers, positive vibes, fingers crossed...you all know the drill)

All things considered, Trey is doing just fine. He had his 15 month check-up last week and is "healthy". He is in the lower percentiles for height and weight but sometimes kids on chemo have to do some catching up after their treatment ends...or Trey is just short like his mom and dad. Either way, he is still too stinkin' cute.

Friends and Family are organizing a benefit for Trey..."Trey Fest" is Saturday October 3rd at Johnny's Irish Pub. Anyone who is following this blog most likely has an evite already. If not, let Tim or I know and we can get one sent to you if interested.

Have a great weekend.

Two More Rounds

The response back from Trey's doctors is to continue on with 2 more rounds of chemo. She came to this recommendation after consulting with other COG docs and they feel that with a 98% success rate with 4 rounds it makes the most sense to finish out the full 4 cycles. They do not have a good way of identifying those kids that are "good" with only 2 cycles and those that need 4. Surgery is not the recommendation at this time mostly due to the potential long term effects of spinal surgery on such a little guy. Trey will be admitted to Strong on September 8th for his 3rd round of chemo. This round takes 3 days to administer the medications so Tim and I will be chasing the little guy around 4-3600 next week. One medication requires Trey to be connected to a blood pressure machine while it is administered adding yet another moving part to the equation. Should be interesting. The journey continues. Lots and Lots of positive vibes and prayers for little Trey that he remains strong trough these next two (and hopefully last two) rounds. He is our little trooper!