Good monthly checkup

Had the 1 month appointment with Dr. Casey, Trey's oncologist, on Monday to go over the blood and urine lab reports. Everything is in the "normal" range so this is good. She was considering revising his MRI/MIBG scanning schedule from every 3 months to every 6 months, but she consulted with his former doctor (who had 25+ years of experience in children's oncology) and she recommended to stay on the 90 day schedule for at least 1 year post chemo. While we aren't thrilled to have him go under general anesthesia so much (he has to every time he gets an MRI), we'd rather be absolutely sure that his tumor isn't growing or spreading, and the MRI is one of the ways they can stay on top of the tumor's behavior.

Aside from that, we have an appointment scheduled with the neurosurgeon who did part of the surgery last March when they took the mass out of his chest/off his spine. We noticed a few months ago that Trey's right hand is always colder than his left. It's never blue, he is very coordinated with that hand, and he doesn't ever seem to be bothered by it, but it's just something we want checked out in case it's somehow related to the surgery. Trey has a touch of Horner's Syndrome as a result of the surgery, which was caused by the disruption and contact the surgeons had to make with his sympathetic nerve that they cut the tumor off of. The Horner's is what causes his "sleepy" right eye, smaller right pupil, and inability to sweat on the right side of his head. Is the cold right hand a coincidence???????

Looking forward to Josie's 4th Birthday this Friday!

Here are a couple pics of the big guy from last month, after he fell on a bookshelf corner and got a wicked shiner. Looking pretty bad ass!!