So Long Tubies!

Trey had the surgery to remove his Broviac catheter this morning...WHOO HOO! We were at the hospital by 6:15am and home by 8:30am. Trey did great and is taking a little nap now. The doctor came out after the surgery and handed me the catheter in a bag so we could take it home! A little souvenir of sorts. I just had to attach a picture to show everyone. It is pretty neat to see it now that it isn't in his chest, just hope it is the only one we ever have as a memoir. Getting this out didn't come a day too soon as Trey's chest was so irritated by the adhesive and cleanser that he practically itched the dressing off the other night. Thankfully the tube was still in tact in the morning...Ugh!

Since we were saying goodbye to the tubies this morning, we did a little photo session last night so we can remember it. I included some pictures below. Once Trey is ready, he and Josie are starting at a new "school" together. Trey's first follow up appointment is at the end of this month. We hope for an uneventful visit. :) Lots of prayers and positive vibes for that! I can almost see things heading back towards "normal" sometime in the foreseeable future.

Take Care and Stay Healthy!

Lovin' it.

Trey's test and scan results are in and the news is favorable! His tumor has shrunk by 25% since the last scan in August. This is great news and the doctors believe the tumor should continue to shrink as the cells inside of it die. The tumor may not go away completely but as long as the cells inside of it are dead, that is OK. The MBIG scan showed the tumor still "lighting up" indicating abnormal cells, but the image was less bright than the previous scan. The doctor said this could be the abnormal cells dying off. Either way, she said it was all good news. Protein levels in his urine are all within normal ranges still. Next recommended steps are to monitor him closely with blood and urine testing each month and rescan in three months. Yep, that's right, NO more chemo scheduled. Whoo Hoo! So, I was ready to stroll down to the closest operating room and have them remove the Broviac catheter but I am settling for a scheduled removal in a couple of weeks. A real bath is just around the corner for the little guy. Thank you to EVERYONE for EVERYTHING especially the positive vibes and prayers for Trey. Keep 'em coming. He is doing just great and we are heading in the right direction!

Cycle 4 Complete!

Trey officially finished the 4th Chemo cycle on Monday October 19th. His counts are steady and he is going for the second MBIG scan this afternoon. Josie has been home from daycare the past week in an effort to keep everyone healthy as much as possible. Trey loves having his big sissy home because he has someone to play with and Josie likes being mommy's helper. It is nice to have them both here. Josie kisses Trey a lot and says that she is making his boo boos go away. What a sweet little girl (when she isn't tripping him or pushing him over). Trey took out a chunk of Josie's hair today though, so I think the tides are going to turn very soon. Prayers and positive vibes for our little trooper. Take Care.

Up, Up, Up!

Cycle 4, Day 15 and Trey's counts are back on the rise! No more shots. His platelets are still low but holding steady from last week so they should start to rise now that we stopped the shot. We met Trey's new oncologist yesterday and it went well. She is going to continue to consult with our previous oncologist as we proceed with Trey's care and that makes me feel more comfortable with the transition. Scans are set for next week and follow up on 10/26. Lots of prayers and positive vibes for Mr. Trey that he finishes out this cycle strong and his scans come back favorable.

Stay warm!

Big Sister, Little Brother

Cycle 4, Day 9 and Trey is in good spirits today. We will see what his blood draw brings tomorrow. I wanted to post these pics taken last week. Trey got caught up in a "Dress Up" session Josie and I were having. I couldn't resist. Isn't he a cute Tinkerbell?

Thank You Thank You...THANK YOU!

Cycle 4 - Day 8 and Trey is doing well. His counts are holding strong and we are going to continue his cell booster shots until his next blood draw on Thursday. Fingers crossed that he can make it through the next few days without his cell counts crashing. Trey's oncologist has moved to a different dept. in the hospital so she has referred us to an oncologist that is new to the team and is from Sloan Kettering in NYC. We meet her on 10/12, I am eager to hear her thoughts on next steps for Mr. Trey. If Trey stays healthy through this cycle and his counts recover, the follow up MBIG and MRI are already scheduled for 10/20-10/23. On 10/26 we meet with our doc to review results and talk about next steps.

Trey Fest was this past Saturday and we can't say Thank You enough to everyone that was involved in the planning and attended this awesome event. We are overwhelmed by the generosity of our friends and family. The day was gorgeous and it was so fantastic to see everyone that is supporting our family and pulling for Mr. Trey to get better. There aren't adequate words to describe how wonderful everyone is and how very grateful we are. So, I just keep saying THANK YOU!

Josie has decided to be Snow White for Halloween and Trey is going to be Superman. Last year he was a Carrot and couldn't even walk so he didn't experience "Trick or Treating". This should be a fun Halloween. Josie will show him the ropes and probably help herself to any of his candy she thinks should be hers. Ahhh, big sisters!

Take Care.

Cycle 3 - Complete

Cycle 3 - Day 21! Another cycle behind us, whew. Trey had his blood drawn this morning and if his counts are still stable then we head back to Strong tomorrow for Cycle 4. He is eating and feeling good, so that is a plus that he heads into the cycle strong. I really, really, really hope that this is the last cycle. Trey's sleep is still all over the place. We'll work on that once he is better, for now, he should enjoy sleeping in mommy and daddy's bed! We will be in the hospital from Tues-Thurs. Tim is actually hoping to get more sleep in the hospital, so that tells you how little sleep we are getting now. :)

Plans for Trey Fest are coming together and we are so looking forward to this event. The friends and family that have organized this are truly awesome, I can't thank them enough. They have even put up with me butting in along the way, they know how I am so they are "managing" me well. I don't get out much these days in case you didn't notice so I am really, really looking forward to seeing people and getting a break from episodes of Blues Clues. Among the many donations that they have coordinated, I just wanted to mention one that I thought was just too cool. Palmer's Food Distributors are donating hots and hamburgers for the event (yummy) and they read Trey's blog and also donated an entire case of meatballs for little Trey! This is too awesome. It is also nice because Nana and Papa can get a break on meatball making.

Take Care!