We met with Trey's Oncologist yesterday to review his MRI. Basically, according to the report the tumor is unchanged compared to the last MRI done in June. Not exactly the news we were hoping for but this is not bad news by any means. It's just news. Good news is, all of Trey's counts have recovered from the last round of chemo and the Doc noted she was pleased to see how his counts rebounded in both cycles. Good, strong little boy! His urine test done after cycle 1 showed his protein levels to be back within normal range which is a good indicator (but not the only) that the chemo is working on the tumor. Unfortunately, there is no way to know for sure if the tumor is still "alive" or not. For lack of a better phrase, this part just stinks, but we get over it and get on with it. Here we go!
Next steps...along with the results of Trey's urine test done yesterday, the Doc wants to consult with the other Peds Oncology Docs at Strong this Friday, reach out to the International Neuroblastoma group of Docs to get advice and also review all of Trey's MRI's with one radiologist to see if together they come up with the same conclusion regarding the progress of his tumor. After all that is done she will reconnect with us and hopefully have a recommendation or maybe options that we will have to decide on. Her initial thought is that we will either need to proceed with two more rounds of chemo and re-scan following or we wait 3 months and re-scan Trey to see if the tumor has grown. If we decide to wait the three months, they will keep a close eye on Trey, checking his urine monthly to see if the protein levels increase that would indicate there is new growth of the tumor. Either way, little Trey-Man's journey is not over just yet. They want to keep the Broviac in for now so my nursing duties will continue for a while longer at least. Keep up all the positive vibes and prayers for Trey. We are getting him better one step at a time. Trey is going in for his 15 month check up next week and his new favorite thing to do is whatever Josie is doing. She is less than thrilled with his new interest at times but does love that he thinks she is the funniest person on earth!
THANK YOU for all the dinners once again...Tim's belly thanks you also!
Tuesday, August 25, 2009
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